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Medical Assistance Sierra Leone has been working with the Sickle Cell Carers Awareness Network (SCCAN) for around ten years, supporting their vital work with people living with sickle cell disease in Kono District. SCCAN is a community-based organization, established by parents of children suffering from sickle cell disease.
Sickle cell disease (SCD) is a complex condition requiring specialist care and management. Misdiagnosis is common, with many health workers interpreting the symptoms as malaria. The diagnosis is usually made when a patient presents with a severe complication or crises. It is estimated that 80% of children with sickle cell anaemia in Sierra Leone do not reach their 5th birthday. Early detection, management and counselling is essential.
SCCAN urgently need to move into a larger space to support the 2,000 children registered with them. A building has been found, and 75% funding has been secured. SCCAN now need to find match funding of $3,000.