My beautiful daughter Molly was born 5 years ago. My world was completely changed by her arrival... I was the happiest mother ever.
A few days after turning 3 months old she developed pneumonia and then started have seizures. After 5 weeks in hospital and after numerous occasions of me thinking I would never bring my
little girl home we finally made it but not without a few more additions to our life style. We can home on oxygen so carrying cylinders around, having large cylinders in the house and a noisy concentrator for the night time oxygen!
6 months later we were admitted to hospital again as her night time
sleep pattern was non existant. I was then told when in a deep sleep Molly could not breath deep enough to expand her lungs so she was given a Bipap ventilator for night time, yet again more equipment and even more sleepness nights for us.
Our journey had only just begun and getting used to a child
with so many other medical conditions was a very quick learning curve. Having a Hole in the heart, Dislocated Right
hip, Scoliosis and low muscle tone and development delay were all other areas that both of us had to deal with on a daily basis.
Molly has had three very long visits to Paediatric ICU being
on life support all of these times, being a little fighter she has shown all of her consultants that she is tougher then they thought, she just does it her way and in her own time.
Every month is not without hospital appointments to see
Consultants, have sleep studies and also home visits by the Community Nurse,physio and OT.
We are having adaptations to our home, not all of which the
Council will fund – having to use equipment for physio purposes like a standing frame and walker space is a necessity and this is not recognised as a need and will not be funded. I am therefore
asking for help to raise funds for a small extension with ramp access to the garden which will help Molly in her daily routines. This is not something that comes easy to me but it is for the most beautiful little girl and I will do whatever it takes so that she has what she needs.
Any donation no matter how small or large will be of great help to reach our target, so please whatever you can spare will be greatly appreciated.
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