In May 2015 Molly was full of smiles but exhausted. She had a sore throat, a headache and a badly blocked nose. She was having difficulty breathing, so we went to St George's Hospital a&e, the diagnosis was glandular fever. She was admitted and within a couple of days we were in St James wing GICU, her airway severly compromised.
A week later following a harrowing cardiac arrest, ventilation and sepsis we were told she had a life threatening disease, Haemophagocytic Lymphohistiocytosis. This is a rare blood disease that destroys and attacks anything and everything indiscriminately and unpredictably causing multiple organ failure.
The GICU became our home as we watched unrivalled dedication from teams of specialists, nurses and supporting staff as they fought so hard to save Molly's life. Molly battled for 6 grueling weeks on life support, enduring chemotherapy and complex critical care. We lost her on July 1. She was 19.
We set up Molly's Smile Fund as a beautiful and lasting legacy to, and in memory of an undilutedly gorgeous girl. So let's walk on in her warm footsteps with fond memories in our hearts and keep that iconic 'Molly' smile eternal whilst helping others.
We have chosen to support the St George's GICU charity and funds raised will be utilized to provide additional resources for the dedicated teams of highly trained critical care professionals with anything that will enhance the already amazing care they provide. We would also like to further improve the difficult and highly stressful GICU experience for patients and their families. This will keep Molly smiling.
Jane, Charlie, Harry and Bella Burdett xxxxx
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