Retinoblastoma (Rb) is a very rare form of eye cancer which affects around only 50 children each year in the UK.  Despite having a 98% survival rate, around 70% of children with Rb in one eye (unilateral) will need to have their eye removed to save their life, and children with both eyes affected may have a visual impairment for life. Tor was diagnosed with unilateral Rb at just 11 months old (see photo above). There was no family history and no obvious signs of a tumour, except for an occasional white glow in her eye. Tor had her left eye removed 13 days after diagnosis and her first artificial eye was fitted a couple of weeks later. The following 4 years were spent attending frequent check ups at London hospital clinics, (the initial few being under general anaesthetic).  Since then Tor has had 2 further operations on her eye socket and regularly visits her artificial eye specialist to adjust her eye or have a new one fitted. We appreciate how lucky Tor has been compared to other children, as for many they are still fighting their battle or have sadly lost it. 

Since diagnosis, the Childhood Eye Cancer Trust has always been there for us as a family, be it with practical advice, emotional support or introducing Tor to other children with Rb. In addition to supporting families, the Trust also raises awareness and funds research into the condition as early diagnosis can be life-changing. Please take the time to read more about this unique charity and help us to support them in the valuable work that they do .  

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.