Let's do it for Harrison!

sorin berniczki is raising money for Harrison's Fund

Participants: Gian-Franco, Christian, Dave, Pete, Harry, Mark, Anderson, Chris, Jacques, Matt, Sorin, Yuri, James, Paul

Donations cannot currently be made to this page

Tough Mudder · 26 September 2015 to 27 September 2015 ·

We're here to bridge the gap between needing Mental Health support due to a devastating Duchenne diagnosis and accessing the NHS services families facing Duchenne need. Therapy empowers families to navigate the complexities of DMD with a greater sense of understanding and emotional well-being.

Story

Harrison's Fund is named after the eldest son of Alex and Donna Smith; a charming and cheeky little man. He's single-minded when he's set himself a goal: from cutting Daddy's hair to being a perfect gentleman at Aunty Charlie's wedding. Everyone who meets him loves his winning smile, his engaging character and the devilish twinkle in his eye.

To most people Harrison looks completely healthy. But on the inside, the powerful little boy is struggling. His muscles are deteriorating at an alarming rate. Because he has Duchenne Muscular Dystrophy (https://harrisonsfund.com/about-duchenne.php).

By the time he's a teenager Harrison will lose the ability to walk. Eventually he'll lose all muscle function in his body. Like all boys with Duchenne he'll die in his late teens or early twenties from heart or respiratory failure.

Our goal is to raise money and help to stop Duchenne, or at least find a way to slow it down significantly, before it has a chance to dim the twinkle in Harrison's eye. 

Having spoken to some of the best organisations in the world fighting Duchenne, it's clear that for the very first time there may actually be a chance of a major breakthrough. Over the past few years, scientists have made giant strides in gene therapy and molecular medicine, and pharmaceutical companies have begun investing in research that may well bring Duchenne therapies to market.

We need your help to take advantage of this momentum. And make sure that there doesn't need to be another Harrison's Fund!

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Donation summary

Total
£2,616.81
+ £495.93 Gift Aid
Online
£2,616.81
Offline
£0.00

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