Early last year beautiful Mollie was diagnosed with a rare neurodegenerative childhood disease Ataxia Telangiectasia or ‘AT’.  

To many this will mean nothing - as most will not have heard of this condition... to us it has shattered our world... 

Having AT means Mollie and other kids like her will struggle with balance, coordination, speech and fine motor skills, this progresses from the age of 5 - often causing tremors and children are eventually enabled by wheelchairs by the age of 10.

Immune deficiency means Mollie is more prone to infection and unable to create antibodies after receiving general immunisations. 

Another cruel aspect to this condition is a predisposition to cancers, particularly blood cancers and a sensitivity to radiation - therefore certain treatments to fight cancers cannot be used on kids with AT. 

In addition to this the respiratory system is also effected and often children with AT suffer with lung disease.

Thankfully Children with AT retain cognitive skills, although this is completely heartbreaking that they fully understand that they are loosing ability and skills that the rest of us take for granted... walking, reading, writing and even speech becomes difficult.

Currently there is NO TREATMENT and NO CURE... 

There are no words to describe the suffocating  feeling of knowing this lies ahead for our amazing little girl.

Although Mollie has always shown symptoms she is so active right now and especially loves gymnastics and to dance -  the thought of slowly watching her loose the ability to do these things is heartbreaking, it’s the thing we think of when we wake up in the morning and the last thought when we go to sleep, it over shadows the happy times and we are so desperate for a cure.

AT is a CRUEL DISEASE that ATTACKS CHILDREN  - We need to raise urgent awareness and funds to help all children with A-T find a treatment or better a cure.

Thank you for supporting our Mummies and Friends by sponsoring us to walk 26.2 miles throughout the month of July, and for helping us to save our little girl from this Rare Disease - we have so much hope for a treatment or cure...  

Spread the hope - Walk, Donate and Share... 

Let’s create a miracle 💕

If you would like to sign up and take part please get in touch via @Molliesmiracle on social media.

Please share your photos of your journey #mummymarathon #milesformollie 

Thank you 💕 

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