Daisy is 8 and has a rare neurological condition called Rett Syndrome. Daisy has spent a lot of her life in and out of hospital due to the many health complications Rett Syndrome has thrown her way.

For the 4th time Daisy’s great uncle Ken and family are hosting a night of music to raise money and awareness for Reverse Rett. The event will take place as both an in person event as well as an online live stream - donations can be made on the night or anytime via Just Giving. 

The night will feature live bands followed by a DJ for those able to stay up past my bedtime.

Reverse Rett not only fund research into treatments for Rett Syndrome, but more recently have begun to fund a specialist centre in London that support children and adults with the complexities of Rett. They have been invaluable to Daisy and all of our family, as Rett is a challenging and complex disorder with few doctors and health professionals having any specialist knowledge on the condition. Without the support of Reverse Rett the creation of this centre would not have been possible and it continues to rely on charity funding to keep going.

Your donation will make a real difference to Daisy and many, many others living with Rett Syndrome. Thank you as always for all your support.