Story
<p><span style="color: #000080;">This is the JustGiving page of <a href="http://www.myasthenickids.org">www.myasthenickids.org</a> </span><span style="color: #000080;">the family support network of the MGA National Children's Branch, supporting children, young people and families affected by </span><span style="color: #000080;">Congenital Myasthenic Syndrome (CMS), Myasthenia Gravis (MG) or Lambert-Eaton Myasthenic Syndrome (LEMS).</span></p>
<p><span style="color: #000080;">The support network and branch were established in 2009 by a group of parents keen to find, and connect with, others affected by these extremely rare conditions. As families are spread accross the country an important focus for our fundraising is the ability to hold weekends and events where families and children can meet each other, share their experiences of these conditions, learn from each other and support each other. </span></p>
<p><span style="color: #000080;">We are now fundraising for the 2010 Children's Weekend. </span></p>
<p><span style="color: #000080;">The first such meeting was held in August 2009 - details of which can be found here on our website: <a href="http://www.myasthenickids.org/Ourchildren/ChildrensWeekend2009.aspx">http://www.myasthenickids.org/Ourchildren/ChildrensWeekend2009.aspx</a> </span></p>
<p><span style="color: #808080;"><span style="color: #000080;">Thank you for your interest and support, it is greatly appreciated.</span> </span></p>