Wacky Races

Natalia Parrish is raising money for PACS1 Research UK
Donations cannot currently be made to this page

Wacky Races · 19 July 2017

PACS1 Syndrome is a very rare genetic condition caused by mutation of the PACS1 gene. There are just 100 cases that have been identified worldwide. Diagnosis is typically done using full genome or exome sequencing. Both methods are expensive and not easily available. There are likely many more cases out there, that will eventually be reported as people learn about the condition, and testing becomes more affordable and available. Our charity is trying to raise awareness of PACS1 and contribute to further research and support of people with this condition.

Story

Earlier this month we organised a rally called Wacky Races in hope to raise money for our charity PACS1 Research UK. This entailed three days driving from the UK to Monaco, going through France, Switzerland and Italy; in cars worth under £1000! Unfortunately, before the event, our charity registration number and JustGiving page were still being set up. Thankfully, everything is now in order and you can donate! 

Thank you to everybody who took part in Wacky Races and your support, now you can donate your sponsorship money. To all our friends and the PACS1 families, please share this page to raise money for our charity and spread awareness.

To find more information about our charity and to understand what PACS1 is all about, follow the link below.

https://www.justgiving.com/pacs1research

Donation summary

Total
£2,713.00
+ £480.75 Gift Aid
Online
£2,713.00
Offline
£0.00

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