Thanks for taking the time to visit my JustGiving page.

We are raising money and awareness of a rare genetic condition PACS1. My youngest daughter Nina is 11 years old and was diagnosed with this condition in July 2015. There are only about 70 children and young adults in the world diagnosed  with PACS1. There is a small group of geneticists in USA who are working on research of this condition. Thank you for making donation to this charity, which will help to understand how to assist people who are diagnosed and to make others aware of this rare condition.

Natalia Parrish