My friends Elena Bacley, Svetlana Boutwood, Anna Bennett, Elvira Cutler and I decided to challenge ourselves and walk up Scafell peak. We are hoping to raise money for our charity PACS1 UK to help children and adults with this rare condition. As most of my friends know my daughter Nina is one of these children and this led us to set up this charity, so it is very close to our hearts.

Thank you very much for your support and donations.