Story
Thanks for taking the time to visit my JustGiving page.
A-T or Ataxia Telangiectasia is a rare genetic condition. It is degenerative, life-limiting and savage. Children born apparently healthy start showing symptoms around the age of two when they start to lose their balance and coordination. By the age ten most need to use a wheelchair and as their friends gain increasing independence during adolescence, young people with A-T become increasingly reliant upon their parents and carers as their condition continues to deteriorate. A-T also affect the immune system resulting in frequent chest and lung infections and a high risk of leukaemia and other cancers. The is no cure for A-T and average life expectancy is just 26.
The A-T Society offers a unique lifeline to families and funds research to find new treatments and ultimately a cure. Every pound donated in sponsorship will help people with A-T live well and give me the extra oomph to run this!
I have been the Coordinator for the National Adult A-T service at Royal Papworth Hospital for nearly 6 years and have thoroughly enjoyed meeting and getting to know all the young people and their families. I'm doing this run in memory of all the ones we have lost over the years and to give hope for a cure in the future.
Please support me: I say I'm not a runner but these lovely people I'm running for really can't.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
