Thank you for taking the time to visit my JustGiving page.
I am running the 2017 London marathon for the tuberous sclerosis association. This is a charity very close to my heart as it is the condition my older brother Robert was born with. Donations will help fund vital medical research and provide personalised support services for people with this condition.
Tuberous sclerosis is a genetic condition that can lead to growths in various organs of the body, but those most commonly affected are the brain, eyes, heart, kidney, skin and lungs. These growths may also be referred to as tumours but they are not cancerous. When they cause problems it is mainly because of their size and where they are in the body. TSC growths have different names depending on which organ they are found in.
The impact of TSC varies considerably, with some people being relatively mildly affected (they may not even know they have TSC) and others being more significantly affected. This impact may be evident in the early years, or not until adulthood. Thanks to research findings and with improved medical care, people with TSC can expect to live healthier lives with a normal life expectancy, in most cases.
Thank you for visiting my page and thank you for your donation!
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