Jenny, Tony’s wife, and Mum to their children Kelly and Emma was an intelligent, gentle natured woman with a huge love for her family, music and dance. Huntington’s disease, a severe degenerative neurological condition started to take away who she was at just 40 years old. Jenny and many others have faced years of painful experiences losing the ability to walk, talk, eat and think. It’s the armageddon of diseases. Devastatingly it’s too late for Jenny, but ground breaking research in gene silencing shows there is real hope of changing the way things are for the Next GENEration
Inspired by an American family suffering with HD who cycled 3000 miles across the US in 8 days producing a film called The Longest Journey, one man and his family have decided to extend the reach of their message by journeying the length of the UK with two teams of cyclists in just three days.
In May 2019 they will cycle for 24 hours a day and through the night, with teams leapfrogging each other down the country 50 miles at a time.
Their aim is to generate maximum possible impact by producing a film documenting their efforts alongside their personal story of Huntington’s Disease. All of this is to raise awareness and important funds to support the 'gene silencing' research being conducted by UCL.
For the #NextGENEration