Your friends are fundraising. Don't miss out, opt in.

137 %
£6,852.00
raised of £5,000 target
by 175 supporters
Donate
Nick Thorne avatar
Nick Thorne

Nick's Coast to Coast (150 miles) in a day page

Cycling from Seascale to Whitby over big hills! for CdLS Foundation UK because they provide amazing support to CDLS families.

137 %
£6,852.00
raised of £5,000 target
by 175 supporters
Donate
  • Event: Coast to Coast in day, 23 Jun 2018

CdLS Foundation UK

The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime

Charity Registration No. 1054033

Story

Thanks for taking the time to visit my JustGiving page.

I will be participating in the Northern Coast to Coast challenge on the 23rd June 2018, cycling from Seascale (Lake District coast) to Whitby (North Yorks coast) in a day. The route is a 150 miles with 4500 metres of ascent taking in the infamous Hardknott and Wrynose Pass amongst other 'slopes' on the way. It is an organised ride but I will be cycling solo and drafting anyone/anything I can get close to. Fingers crossed the wind is blowing the right direction!

And now the serious bit, my son Austin (2.5 years old) was born with a very rare genetic syndrome (Cornelia de Lange Syndrome), briefly, this has affected Austin with slow growth (6.5kg), physical and mental developmental delay, hearing loss amongst other equally serious issues. Despite all this he is a very cheeky chappy!

I would like to raise some money for the CDLS charity that provides support to children, adults and families affected by the syndrome.  The charity is very small and run by volunteers, it receives no government funding and relies solely on donations. A large proportion of the money raised supports further research into the syndrome at Birmingham University and twice a year the Doctors/PHD students come (for free) to the CDLS conferences and present the latest research. It is likely that any money raised will have a positive impact on Austin's and other children's future as we learn more about the syndrome.  

If you could spare a few pounds to sponsor me it would be very very much appreciated. On the off chance any business's wish to sponsor me I will be contacting the local papers (West Somerset) over the coming months to raise awareness of CDLS and the ride. I will also be wearing a bespoke jersey with lots of room for company logos.

If you have made it this far down then thank you so much, needless to say I'm equally excited and terrified about the ride (more terrified!). Now to lose some weight and get fit!

Nick, Kerrie and Austin Thorne x

-------------------------------------------------

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Photos

9
  • +7

Supporters

175