SMA is a genetic neuromuscular disease, which means it is inherited and affects nerves responsible for muscle function. Although classified as rare, SMA is the leading genetic cause of death of infants and toddlers, with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months. Children with a less severe form of SMA face the prospect of progressive muscle wasting, loss of mobility and motor function.
1 in 40 to 60 people is an SMA carrier, i.e. approximately 1.6 million people in the UK
1 in every 6,000 to 10,000 births is affected by SMA. At any one time, it is thought that there are between 650 and 1,300 children and adults in the UK living with SMA.
On September 30th I will be completing a 12 consecutive hours of tennis in aid of The SMA Trust. This will be taking place at the Berkhamsted Tennis Club, and we are encouraging you all to come along and cheer him on, donate a few pennies - and even play some tennis if you like!
https://smatrust.org
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
