The Harriet Downing Fund

Nicole Farren is raising money for The Brain Tumour Charity
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The Harriet Downing Fund · 18 January 2021

The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. A cure really can’t wait

Story

Harry was diagnosed with a primary high-grade brain tumour at the beginning of May 2017 at just 27 years old. After Harry's surgery to remove part of the tumour, she faced six and a half weeks of daily chemo and radiotherapy with such fierce bravery and positivity. Following this, she then endured further chemotherapy for another six months.

In February 2018 Harry celebrated her 28th birthday and end of chemotherapy with the news that there was no evidence of tumour in the brain and she went back to work and started to live a normal life again.

Around six months later Harry noticed a lump in her neck. Being alert to these kind of symptoms having been through treatment so recently she booked an appointment at the GP who told her it was probably a reactive lymph node due to the recent treatment she went through. As primary brain tumours rarely spread outside the Central Nervous System (CNS), we hoped this might be the case.

However, after a subsequent routine check up with her Oncologist and more tests, including an operation to remove a lymph node for testing, it was confirmed two days before Christmas that the medulloblastoma had spread to the lymph nodes in her neck.

In January 2019, Harry underwent a left neck dissection where they removed 160 lymph nodes from her neck. Her PET scan following this showed the cancer had spread elsewhere and she has since been on a number of chemotherapies to keep the cancer at bay.

In June 2020 she had the news every cancer patient and their family and friends dread. The treatment wasn’t working anymore. There was hope that Harry would be able to undergo a stem cell transplant, but after a few months of further chemotherapy, Harry was told her cancer is no longer chemo responsive. Harry is now enjoying the time she has drinking wine and living life to the full.



Donation summary

Total
£1,434.50
Online
£1,434.50
Offline
£0.00

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