We feel reallly sad to tell you all that our beautiful Benny Boy passed away peacefully in his sleep on Thursday 23rd February just before midnight. He fought so bravely but in the end his little body just couldn't carry on. We were all with him holding his hand, telling him how much we loved him with his favourite songs playing in the background. We know Benny would want to thank you all for following his amazing journey and for all your kind comments and for your support of Clic who have helped us all so very much.
With everything that has been going on I had completely forgotten that 9 months ago I entered The Midsomer Norton Triathlon.
It wasn't until they emailed me earlier this week to remind me that the triathlon is taking place on 4th September 2011 that I remembered. My first reaction was not to bother doing it but on reflection I thought it would be a great opportunity to raise some money for Clic Sargent who have been fantastic in the way they have supported Ben, his older brother Luke, Su and myself.
If you are able to, it would be great if you could sponsor me.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
Thanks to everyone who has sponsored me and supported Clic over the past 18 months. We've now decided to raise £1,000,000 over the next few years for Clic. We are already at almost £160,000 which is great and we have lots more events planned this year.
So the next 'Benny" adventure is to run the london Marathon. When I set off it will be 556 days since I was at the top of Kilimanjaro. That means, that in that time, approximately 5560 children have been told the devastating news that they have cancer. That's why I'm not going to stop asking for your help and support because so sadly Cancer doesn't stop.
You can read about Clic and what they do at the web site below.
Thank you all so very much for taking the time to support us.
Love Nige Su and Luke
Ben will always be our youngest son, a happy, healthy, fun loving boy and is best friends with his elder brother Luke. However it was a month after his 9th birthday party that our whole world began to crumble, Ben suffered a little seizure which became one of many over the next few days.
We took Ben straight to hospital. Before we knew it, Ben was going through a myriad of examinations, tests, scans and under went a biopsy. A few days after the biopsy we were given the results. My wife Su and I got the news, that as parents we had hoped so hard not to have to hear, Ben had a malignant brain tumour, in other words, cancer. Words can’t adequately describe how we felt at that point, distraught, devastated, shocked, angry; all of these and more. But most of all we felt that we’d stepped into another world in the space of a few seconds, one where we had no experience, no compass to guide us and nobody to turn to. Almost immediately, Ben began a course of Radio and Chemotherapy along with a cocktail of drugs to control his seizures. In the midst of this, Sally and Ally came into our lives.
Sally and Ally are Clic Sargent Nurses, and they provided so much ore than just medical advice. They guided us through how we told Ben’s older brother Luke about what was happening, explained to us about the effects of Radio and Chemotherapy, helped us to navigate the never ending NHS maze and supported us through some of the darkest hours anyone can imagine. But most importantly of all they were there for Ben. It was thanks to Sally and Ally that Ben was able to have blood tests and much of his treatment at home rather than in hospital. It was also thanks to Sally and Ally that Ben understood and wasn’t scared of any of the treatment that he was given, they were always honest, but they always cared about and intuitively knew how our precious and desperately ill our little boy was.
Ben bravely fought the tumour that was continuing to grow in his brain. But in December 2011, 8 months after his initial diagnosis, the doctors sensitively told us that there was no more that could be done, the Chemotherapy had to be stopped. It was at this point that Sally and Ally stepped up even further. With their help, Ben remained at home until he passed away peacefully in our arms on 23rd February 2012, surrounded by those who loved him most. Sally and Ally visited us 3-4 times each day towards the end. Together, we'd made sure that Ben didn’t have to cope with any scary machines or have people around him that he didn’t know. And they cared deeply about Su, Luke and I, they were always quietly there for each of us when we needed them the most, intuitively understanding what we were going through and making sure that we were prepared for what we had to face. They are still there for us now, over a year after we lost Ben, just making sure that we are doing OK and helping us with each stage of what, at times feels like a never ending wave of grief.
Lots of children do recover from cancer but some, like Ben, don’t.
10 families each day in the UK are told that their child has cancer – that’s 10 more families like mine who will desperately need the help of Clic Sargent. So far we've managed to raise almost £160,000 to help other families receive the kind of support which we received from the amazing people at Clic. Our goal is to raise £1,000,000.