Just before Christmas Georgie and I lost our beautiful baby boy.

Our son was a joyful, happy baby - always kicking, wriggling, sucking his hands and playing up to the camera during ultrasounds. However in our 12th week of pregnancy, doctors noticed several abnormalities and our baby was eventually diagnosed with an incredibly rare chromosome disorder.

It meant our beautiful happy baby boy would have faced a lifetime of myriad physical and mental difficulties - limb malformations, brain and renal failure, cardiac problems, severe behavioural issues, "failure to thrive", aggression, depression, schizophrenia... The list went on and on.

This was not a life we could give our darling boy.

Our son Noah Nicholas Holder Griffiths arrived in the world on 17 December, aged 17 weeks.

In honour and memory of our darling Noah we have launched this dedicated fund to provide crucial funding for Great Ormond Street, so the incredible doctors, nurses and genetic specialists here can continue to offer support to thousands of other parents and children when they need it most.

If you are able to donate to Noah's fund we thank you from the bottom of our hearts on behalf of our beautiful son Noah - forever loved and remembered as the joyful little baby he was.