Norah was diagnosed with CDKL5 at four months old after her seizures appeared at just three weeks of age. She is facing a life-long journey of disabilities, including limited ability to walk, talk, and feed herself. We love her with every fiber of our beings and will do all we can to give her the best chance at independence and happiness. 

Please join us as we raise awareness and funds this June to Move CDKL5 Forward! Your generous support will enable the IFCR (International Fund for CDKL5 Research) to continue their work on behalf of the CDKL5 community. They are on a mission to treat and cure CDKL5 Deficiency Disorder by funding scientific research, while helping affected individuals and their families to thrive. 

Thank you for your support! 

Chris, Lisa, and Norah