Orla Ginnell

A walk for Amie

Fundraising for Nystagmus Network
£1,599
raised of £500 target
Donations cannot currently be made to this page
Event: Eye to Eye 4 mile, on 10 March 2019
Participants: Ronan Ginnell, Maia Ginnell, Amie Ginnell, Orla Nally
Nystagmus Network

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RCN 1180450
We foster and fund research to improve lives for people with nystagmus.

Story

Thanks for taking the time to visit my JustGiving page.

Just over a year ago our 2nd beautiful daughter, Amie, was born. In the very early days, we thought Amie was actually blind. As the year went on, after many visits to specialists and many sleepless nights, Amies vision appeared to be improving slightly. 

Amie was finally diagnosed with a genetic eye condition. A symptom of this condition is nystagmus. Nystagmus causes the eyes to wobble and means that Amie has difficulty focusing on things and has issues with depth perception.  Amie has not let any of this stop her so far and is a very inquisitive, curious and extremely happy little girl. 

We are fundraising for Nystagmus Network to help them continue with the support and research that they provide for families like us. We hope you can help. 

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About the charity

Nystagmus Network

Verified by JustGiving

RCN 1180450
Nystagmus means involuntary movements of the eye. It impairs vision, affecting focus and depth perception. At least 1 in 1,000 babies are born with nystagmus. There is currently no cure. The Nystagmus Network is a UK registered charity which provides support, raises awareness and funds research.

Donation summary

Total raised
£1,598.33
+ £52.50 Gift Aid
Online donations
£1,598.33
Offline donations
£0.00

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