Ooni's Skydive

Ooni Staerck is raising money for The Pituitary Foundation
In memory of Aonghas Staerck
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We’re The Pituitary Foundation. We’re a dedicated team offering practical, emotional and peer support to everyone living with or impacted by a pituitary condition, to feel empowered and live with a greater sense of wellbeing.

Story

I would like to raise money for the Pituitary Foundation as it is a charity helping a cause very close to my heart.

For the people that don't know, I lost my brother, Aonghas, in 2009 to a cystic craniopharyngioma that had formed near his pituitary gland. We didn't realise anything was wrong until he started to experience headaches, visual impairment and the fact that I, (his younger sister by 18 months) over-took his height by the age of about 7. Eventually, after many eye-tests he had an MRI scan, which discovered a tumour the size of a golf ball in the region where the pituitary gland normally is. This explained the headaches, lack of growth and poor eyesight. At this point we were still unaware that the tumour was a craniopharyngioma, and it was decided that the best option would be to drain the fluid from inside the cyst.

After the operation, which Aonghas braved through amazingly, (I was the one crying whilst he had his blood taken, rather than him) they discovered that the cyst was in fact a craniopharyngioma, which meant that the likelihood of it growing back was strong. It did, so it was decided that there would be a 'reserviour' put in to the tumour, which is basically a tube fitted through his brain in to the cyst so that it could be drained every few months or so and would hopefully not cause any more problems.

Being the cheerful spirit he was, he braved through the second operation, like he did the first. It was a success but not long after he began to feel ill, was experiencing more headaches and had a loss of appetite. After going back to the specialists and having another MRI scan it was discovered that the tube had dislodged itself from the cyst and was now wedged in-between his brain and the cyst. It was a very unlikely event to have had happened and this meant that Aonghas would have another operation to remove the tube and have a new one fitted.

We all went to the hospital and Aonghas was in good spirits as always, laughing at the fact the man who wheeled his bed down to the operating theatre looked the spitting image of Simon Pegg. My Mum and Dad stayed at the hospital whilst me and my older sister went out to buy some food and a CD that Aonghas had been wanting.

When we got back to the hospital he had still not returned from his operation even though it had been more that the 2 hours originally planned. As I was 12 I didn't quite understand the situation fully. We were told that something had gone wrong. The tube that had dislodged had attached itself to a stem of Aonghas' brain and the stem had snapped as they tried to remove it, causing his brain to bleed and swell, which meant they had to remove the front part of his skull to try and give it room. At this point he was moved hospitals from the one where he had his operations to Intensive Care at Sick Kids, Edinburgh. This was when we were told that even if he did make it through, it would be unlikely to be the Aonghy we knew.

I went home with my older sister to try and get some rest while my Mum and Dad stayed at the hospital with Aonghas. We were called back in the morning but by then it was only the machines and drugs keeping him alive. We kissed his bhudda belly and sang 'You are my Sunshine' and on November the 6th, 2009, I lost my brother and my best friend, aged only 14.

He always used to make me jealous with his flying dreams as I've never experienced them and although we miss him more than anything, it helped to bring my family together in some ways. So for this reason, I would like to go flying with him, and my big sister who is also raising money for the same cause!

He was a beautiful boy with a beautiful soul and it would be amazing to feel like I could be with him in some sort of way again.

 

Donation summary

Total
£400.00
+ £62.50 Gift Aid
Online
£400.00
Offline
£0.00

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