Thanks for taking the time to visit my JustGiving page.
Orla was born with Cytomegalovirus (CMV) on the 2nd July 2018 and she is perfect. However this means she is deaf and has 'brain abnormalities' as determined by an MRI scan. CMV is completely unknown in this country although it can cause substantial damage to unborn babies and result in significant health issues throughout life. It is one of the leading causes of child disability in this country and is more prevalent than Down's Syndrome yet no one has heard of it.
CMV Action plans to change all this by raising awareness, working with medical professionals and lobbying the Government to create a vaccine and eradicate this devastating virus.
By sponsoring me you will directly and positively effect this very small charity and allow them to continue the hard and excellent work they do.
You can find out more about OrlaUP and CMV Acton on our dedicated website. www.OrlaUP.co.uk
Please also take the time to take a look at CMV Action's website (www.cmvaction.org.uk) which has so much useful information on the virus and their work.
The ultra events that will hopefully form OrlaUP are:
- La Sportiva Lavaredo Ultra Trail - 120km, 5,800m ascent. (Place secured 28th June 2019).
- Montane Spine Race - 462km, 16,230m ascent. (Jan 2020).
- Ultra Trail du Mont Blanc - 170 km, 10,000m ascent. (Aug 2020).
- Berghaus Dragon's Back - 315km, 15,500m ascent. (May 2021).
Thank you for supporting CMV Action. Awareness is key and you have helped a great deal to spread the word.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.