The Turbo Trust has received an application on behalf of Owen. To place an order for the SnapDragon powerchair he needs, his family need to raise £18,382. They have already raised £8,000, and The Turbo Trust wants to give them a grant for the rest.
Owen's Mum wrote:
Owen is almost two years old. He is bright, inquisitive and extremely sociable. He is the family joker. Owen has SMA type 1. As a result he has never been able to move himself around on his own; he has never crawled or walked. This means that powered mobility is essential to him. A good powerchair will allow him to fulfil his fantastic potential, to chase his brother, to play with his friends and to explore the world around him.
We hope that Owen will start a mainstream nursery next year and we want him to be as independent as possible.
We also have a three year old son and so we know how much
interaction takes place at floor level during early years; play, reading
time at nursery, having a picnic on the grass at the park, sitting on the floor watching cartoons with friends. So we feel that Owen having a chair that lowers to the floor will be hugely important in encouraging inclusion."
The good news is that Owen is receiving new treatment for his condition which is already improving his mobility and life-chances. But he is still severely weak, so his SnapDragon is going to be a vital asset and will help him make the most of the extra muscle power the treatment gives him. Please donate here to help Owen and others like him.
Please note: HMRC rules do not allow tax refund under gift aid if the donor insists it should benefit a named individual so please bear this in mind when making your donation. Gift-aided Donations made via this page to the Turbo Trust will go into a fund at the discretion of the trustees.
It is the trustees' aim to provide enough money for each beneficiary to order the equipment they need. And
the trustees do take note of in whose name funds have been raised when they make grant decisions. The more gift-aided donations received here the more funds the trustees have to help Owen and others like him. If you only want to help Owen and do not want to give to the charity, please contact his family directly, rather than donating here, as justgiving fees may reduce the value of your gift.