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Callum Clare

Old White Hart 5k Family Fun Run for the Life for Lewis Appeal

5k Superheroes and Villians Fun Run - 17th June 18 for Tree of Hope because Lewis requires disability specific equipment

£2,570.50
raised by 49 supporters
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  • Event: Lewis Herbert 2 Appeal, 30 Nov 2020

Tree of Hope

We offer hope to families to transform the lives of sick children

Charity Registration No. 1149254 In Scotland SC042611

Story

Please join us at the Old White Hart, Far Cotton, Northampton on Sunday 17th June 18, for what looks set to be a day of fun, family and friends!.

A 5k Superheroes and Villians Fun Run will start at 11am followed by various entertainment, music, raffle, food and drinks.    

The suggested entrance fee for the run is £6 per adult and
£3 per child (under 5’s are free).  
Registration can be done by donating the suggested entrance amount to this event Just Giving page.  Please can you make sure that you state the full names of each runner in the donation comment box, so we can keep an accurate list, many thanks.  

RAISING MONEY FOR VARIOUS DISABILITY SPECIFIC ITEMS, EQUIPMENT, AND HOME ADAPTATIONS/ALTERATIONS WHICH ARE NOT AVAILABLE TO ME UNDER STANDARD NHS PROVISION

(Words from Mum and Dad explaining my condition etc)

Lewis Herbert was born in November 2002.  He was diagnosed with West Syndrome at 3 months of age.

This has since developed into a condition called Lennox Gastaut Syndrome (LGS).  LGS is a rare and extremely severe form of epilepsy with multiple seizure types.  It causes severe global developmental delay.    

He can have 100’s of different seizures every day and his condition is resistant to any medication or therapies which have been tried. 

He is severely disabled and unable to do anything for himself.  He relies on us for all his personal care needs.  He requires 24hr care on a daily basis and we have both had to give up work to look after him. 

During 2015 we raised enough money for my dream of a wheelchair accessible/sensory garden at home.  Thank you so much to each and everyone of you who donated towards my new garden it's absolutely amazing, and I can now access my garden in my wheelchair and spend quality time together with my Mummy, Daddy, sister and brother all together in our back garden, something which I have never been able to do.   Full details about the garden are below;
http://www.timotayplayscapes.co.uk/playground-case-study/life-lewis-domestic-sensory-play-garden 

My Mummy and Daddy have decided to continue fundraising for me as unfortunately due to my complex disability I am always going to need various disability specific items and equipment which are not available to me through standard NHS provision.  The majority of the items are a necessity due to my extremely complex disability and condition. 


I'm currently trying to raise funds for the following;

Therapy/Companionship Dog and appropriate training (To be my companion and best friend, and to sit on my lap and also alongside me in my wheelchair and soft room (so I can feel it's warmth), this would have a calming influence on me).

House Adaptations/alterations - Any items and works required to help me safely access the downstairs of my house in my wheelchair as I'm getting bigger and so is my wheelchair!.  Also any necessary adaptations/alterations required in my house, to allow my Mum and Dad and carers to continue to look after me at home due to my complex condition and severe seizures.   

I would be so very grateful if you were able to donate any amount to help me try and reach my targets and dreams, and to help improve my quality of life on a ongoing basis.   

Much Love,

Lewis x 

For more information about Lewis please visit www.lifeforlewis.co.uk


Thanks for taking the time to visit my JustGiving page.

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Photos

2
  • The 5k Fun Run Map

Supporters

49