Thanks for looking at this page.

Jed Thirkettle is 13 years old and has Ullrich Congenital Muscular Dystrophy. Any money raised is going to accelerate the trialling in 2014 of a new drug (Omigapil) that might make all the difference.

I'm running as part of "Team Jed" - made up largely of friends and family.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity.

Anything you can give will be much appreciated.

Parry