Steve, Rosie, Richard, Matt, Rob, Adam and Georgia's Wolf Run Page

Rosie Parsons is raising money for Histiocytosis UK

Participants: Steve, Rosie, Richard, Matt, Rob, Adam and Georgia

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The Wolf Run · 5 November 2016

Histiocytosis UK funds research into uncovering the causes of Histiocytic diseases. These include Langerhan's Cell Histiocytosis & Haemophagocytic Lymphohistiocytosis. Seeking early diagnosis, effective treatment and a cure as well as providing information support.

Story

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On the 5th November 2016, Steve and Rosie celebrate their 10 year wedding anniversary by getting muddy and running the Winter Wolf Run with friends and family to raise money for Histio UK. For 3 of the group- Steve, Rosie and Richard- this is the 4th wolf run of the year and the last in the Alpha Wolf challenge. 

Steve and Rosie's son, Archie, was diagnosed with Central Nervous System Langerhans Cell Histiocytosis Neuro Degeneration in November 2015. Among other things, this affects his gross and fine motor skills, speech, swallowing and behaviour. It is considered a 'late effect' of Langerhans Cell Histiocytosis which Archie was treated for when he was 2 years old. Now, at the age of 6, he is having chemotherapy for the second time in his life, in the hope that this will stabilise his condition. There is no cure for this disease.

Histiocytosis is an umbrella term applied to a group of rare diseases, characterised by increased numbers of white blood cells called histiocytes in the blood and tissues. It is too rare a disease to have generated substantial research in medical circles. Histio UK help to fund vital research, awareness and information support to patients and their families.

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Donation summary

Total
£2,495.43
+ £537.50 Gift Aid
Online
£2,495.43
Offline
£0.00

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