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SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

Thanks for taking the time to visit my JustGiving page.

On the 26th May i am walking 17 miles from Denby Dale to Dovestones to raise money for the SMA trust in memoery of my beautiful granddaughter Rowan who was finally beaten by this condition. She fought long and hard to be with us for as long as posible and proved the medics wrong more than once . Words cannot express the feelings that my family have been through and would like to raise as much as possible so maybe one day no other family has to go through he pain of losing someone so young. Rowan was 18 months old when she passed and would have 2 on the day of the walk so giving us something positive to look forward to on a sad day .

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Donation summary

Total
£357.00
+ £86.75 Gift Aid
Online
£357.00
Offline
£0.00

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