Patrick Hawke's London Marathon 2018 fundraising page

Patrick Hawke is raising money for The SMA Trust
In memory of Arthur William Granville
Donations cannot currently be made to this page

London Marathon 2018 · 22 April 2018 ·

SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

Arthur William Granville (my nephew) was born on December 30th 2013.  On March 4th 2014 Arthur was diagnosed with Spinal Muscular Atrophy (SMA) Type 1.  He was just 9 weeks old at the time.  On May 10th 2014, at only 18 weeks & 5 days old, Arthur passed away.

SMA is a devastating disease.  It's the leading genetic killer of infants & toddlers.  I'm running the 26.219 miles of the London Marathon in Arthur's memory, raising money & awareness for The SMA Trust, the only UK charity solely dedicated to funding research into SMA.

Thanks for taking the time to visit my JustGiving page.

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Donation summary

Total
£5,236.31
+ £986.70 Gift Aid
Online
£5,236.31
Offline
£0.00

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