A 100 mile cycle in aid of The Campbell Burns Metabolic Trust
The Campbell Burns Metabolic Trust is a charity,
which will offer support to the families of children aged ten and
under who have been diagnosed with a metabolic disorder.
The Trust aims to do the following:
to provide education and raise awareness of metabolic disorders through the distribution of literature and involvement in local support networks.
to assist in the provision of recreational and leisure time activities for children and their families
to assist in the relief of financial hardship for families of
children with metabolic disorders through the provision of
assistance grants and items of need
to be active in fundraising
The Trust was established
in the name of Campbell Burns, born in January 2012 and diagnosed
with Leigh's Disease in March 2012, a terminal metabolic