Last October, I got lucky and secured a ballot place in the 2019 Virgin London Marathon. Because it’s such a great fundraising event, I have decided to run the 26.2 miles for a small charity that wouldn’t normally get a look in.
MLD Support Association UK, was set up by a friend of mine who’s son developed the disease while at University. Classified as a rare genetic disease that alters the brain, Metachromatic Leukodystrophy (MLD) affects infants, young children and teenagers. At the moment there is no cure and the outcome is devastating for its victims.
As well as supporting the children and their families, with the funds I raise, the charity will be able to push ahead with setting up a national registry of sufferers which will be used for scientific and clinical research to develop new treatments that may one day lead to a cure.
Another reason why MLD Support Association UK is close to my heart is that last year my wife Lesley became a trustee of the charity. With her nursing and child healthcare expertise she is organising a medical and family conference which will next year bring together leading scientists, clinicians and families from all over the country.
Thank you for taking the time to read this page and if you are interested to find our more about MLD please do visit www.mldsupportuk.org.uk