Paul Warrington

Paul Warrington's page

Fundraising for MLD Support UK
£1,372
raised of £1,500 target
Donations cannot currently be made to this page
Event: London Marathon 2019, on 28 April 2019
MLD Support UK

Verified by JustGiving

RCN 1150542
We support families and fund research to find a cure and raise awareness of MLD

Story

Hi all,

Last October, I got lucky and secured a ballot place in the 2019 Virgin London Marathon. Because it’s such a great fundraising event, I have decided to run the 26.2 miles for a small charity that wouldn’t normally get a look in.

MLD Support Association UK, was set up by a friend of mine who’s son developed the disease while at University. Classified as a rare genetic disease that alters the brain, Metachromatic Leukodystrophy (MLD) affects infants, young children and teenagers. At the moment there is no cure and the outcome is devastating for its victims.

As well as supporting the children and their families, with the funds I raise, the charity will be able to push ahead with setting up a national registry of sufferers which will be used for scientific and clinical research to develop new treatments that may one day lead to a cure.

Another reason why MLD Support Association UK is close to my heart is that last year my wife Lesley became a trustee of the charity. With her nursing and child healthcare expertise she is organising a medical and family conference which will next year bring together leading scientists, clinicians and families from all over the country.

Thank you for taking the time to read this page and if you are interested to find our more about MLD please do visit www.mldsupportuk.org.uk

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About the charity

MLD Support UK

Verified by JustGiving

RCN 1150542
MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). We support families affected by MLD, fund research into therapeutic procedures and, as it is a rare disease, provide information about MLD to ensure early diagnosis.

Donation summary

Total raised
£1,371.20
+ £252.80 Gift Aid
Online donations
£1,141.20
Offline donations
£230.00

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