Katy story 

Katy was diagnosed with spinal muscular atrophy and the end of July 2021 at the age of 14 months. After being diagnosed with this condition katy under went treatment at addenbrooke hospital. Katy has been receiving treatment via a lumbar puncture . She has had 4 lumbar puncture and now will recieve them every 4 months. The treatment is to stop her muscle get worse. Katy is unable to bear weight on her legs so is unable to stand - walk - crawl and can’t sit without support