Paula's Marathon des Tables

Paula Jarzabkowski is raising money for PCD Support UK
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Marathon du Tables · 1 September 2020

We are PCD Support UK. We’re here for those affected by PCD, we talk about PCD as widely as possible and we champion research to improve its diagnosis, management and treatment. Primary Ciliary Dyskinesia is a rare, genetic disease (1 in 7,500 people), causing recurrent respiratory infections.

Story

Throughout September I set myself a challenge to complete the 156 miles of the world's toughest Ultramarathon, the 'Marathon des Sables' - over 30 rather than 6 days. I pledged to 5.2 miles exercise/day EVERY day & to complete each day with a small snack on my mini table, making it the Marathon des Tables. 

I've posted the pics & mileage here each day; click on the photo icon to see the novel daily mini-table snack. 

Thanks for your support. This really matters to me. PCD is a rare condition. People with it are highly vulnerable to lung infections. https://pcdsupport.org.uk/what-is-pcd/ They have to shield during COVID19. The PCD Family Support Group has ensured they had advice from government and doctors about shielding & support with managing the re-entry into life after shielding. 

10 y.o. Kylie in this last photo (& her parents) literally did not leave their house, even for a walk, or see anyone for over 100 days because she has PCD. When her class went back to school, at first Kylie couldn't join them, because she remained shielding. A really tough time, and great resilience achieved. Let's hope Kylie and others like her won't have to shield again because of Covid. But if they do, I am so grateful to the charity for the support they will give. 

Thank you for your generous sponsorship. Here is what your funding will help pay for: https://pcdsupport.org.uk/how-to-help/fundraising/ 

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Donation summary

Total
£2,430.92
+ £466.25 Gift Aid
Online
£2,430.92
Offline
£0.00

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