Paul Griffiths

Greg & Paul's London Marathon

Fundraising for Alex, The Leukodystrophy Charity
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Event: Flora London Marathon 2006, on 23 April 2006
Alex, The Leukodystrophy Charity

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RCN 1106008
We provide support to families affected with leukodystrophies


Thank you for visiting our fundraising page.

Greg Kat and Paul Griffiths are running the London Marathon in April to raise money for ALD Life. Both have run marathons for ALD Life in the past.

ALD Life was set up by Sara Hunt whose two sons both have adrenoleukodystrophy (ald).

Its first objective is to make as much advice and information about adrenoleukodystrophy in all its forms readily available to anyone, medical or personal, and to offer support to affected families. Full information can be accessed on their website - On this website you will find practical advice, latest research news, a place to contact and speak to others, what fundraising is going on, plus useful links to other sites.

Our second objective is to raise as much money as possible. All research into the condition is charity or private funded so fundraising is a very important part of this site. We also felt that we should help the hospices that assist affected families as these are a much needed lifeline. As Alex has now stabilised I have found that alternative therapy has been a great help to him but expensive, so thought we should make grants available to families who wished to pursue alternative therapies. We will split any funds raised between these.

Donating through this site is simple, fast and totally secure. ALD Life will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor us now!

Many thanks for your support.



About the charity

Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
Established in 2004, Alex TLC is the only charity in the UK that provides invaluable support and information for anyone with a leukodystrophy, their families, and carers.

Donation summary

Total raised
+ £32.78 Gift Aid
Online donations
Offline donations

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