Thanks for taking the time to visit my JustGiving page.

So, I've decided to do this walk again! Hopefully, it won't pour with rain as it did last year!

And the reason I am doing it is to raise funds for the BDFA. My involvement with this small but important charity is because both my children, Joanna and James were born with Juvenile Batten Disease (CLN3) - a devastating, degenerative, life-limiting disease.

The picture above is one of the loveliest of the three of us together. We lost Joanna in April 2008 (aged 23) and James in July 2016 (aged 26).

Jim (hubby) and I were part of a group who set up the BDFA 20+ years ago to support families  - the charity was needed then and is needed even more now. Families with children and young people with the now 13 variants of this disease now identified, continue to have to fight for all the help that they need, be that medical, practical or at schools.

The BDFA's mission is to enable everyone who is affected by Batten disease to live life to the full and to secure the care and support they need until a cure can be found. The BDFA offers informed guidance and support to families and the professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and ultimately a cure.

So, please donate what you can - anything you can give will be very much appreciated!

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.