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My two oldest children suffer with this rare condition that requires a lot more research into trying to find improved treatments. They suffer the effects of this condition, that needs weekly medication via intravenous injection, to prevent painful swelling around the body. I am attempting this endurance challenge to help raise money as well as to test myself during this third lockdown!

My challenge, is to set off at 4am on Saturday 6th March, and run 4 miles, every 4 hours for 48 hrs. This will not allow any breaks for sleep other than the 4 hour windows.

Wish me luck!!