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Our daughter Clover is 9 years old and 18 months ago was diagnosed with  a rare genetic condition called Primary Ciliary Dyskinesia. PCD sufferers have abnormality of cilia (microscopic hairs that beat within the airways removing secretions from the respiratory tract). The condition affects the nose, ears, sinuses, reproductive system and lungs. If left untreated can lead to lung disease called Bronchiectasis. Unfortunately as PCD is so rare (only 3,000 people in the UK have been diagnosed with it) Clover had a relatively late diagnosis and  therefore does now have a small area of Bronchiectasis on her lung. She also wears a hearing aid as glue ear due to PCD has permanently damaged both her ear drums.

There is currently no cure for PCD - it is a life-long condition and Clover has to do chest physio 3 times a day along with nebulised treatments and a constant stream of oral antibiotic medications. To manage her condition she requires regular  intravenous antibiotics, which involves a 2 week admission each time at the JR in Oxford. She spent 10 weeks in hospital in an 8 month period last year so we are incredibly grateful for the amazing care she receives from the team at the JR (and incidentally Clover is doing her own fundraising specifically for the JR Hospital).

Despite all this, Clover is the most inspirational, positive ball of energy you could ever hope to meet and it is our aim to give her the support and the tools to manage her condition in a way that does not define her life or hold her back in any way.

 I am raising money for The PCD Support group  as it not only supports the families and patients affected by the condition but also continues to bring PCD to the attention of medics which in turn will ensure earlier diagnosis, the correct treatment and a better quality of life for those suffering with PCD.

With so many people raising money for so many causes, we are immensely grateful for any donations and for the ongoing support of our wonderful friends and family. Thank You.