Your friends are fundraising. Don't miss out, opt in.

744 %
£11,169
raised of £1,500 target
by 381 supporters
Donate
Tom Doneghan avatar
Tom Doneghan

Phoebe's Fanconi Fight

I am fundraising for Fanconi Hope because my daughter Phoebe has been diagnosed with FA.

744 %
£11,169
raised of £1,500 target
by 381 supporters
Donate

Fanconi Hope

Fanconi Hope is a charity set up to sponsor research and support those affected by the rare genetic disorder Fanconi Anaemia that affects children and adults, leading to bone marrow failure and bone marrow transplantation, with very high risk of leukaemia and head and neck cancers.

Charity Registration No. 1126894

Story

My 5 year old daughter Phoebe was diagnosed with Fanconi Anaemia in March 2018. FA is a rare genetic disease that severely impacts those affected, causing bone marrow failure, leukaemia and cancer from a much earlier age.
Many children with FA do not live past childhood and those who do have an average life expectancy of around 30 years old. To date there is no cure.
However with funding the care and patient outlook have improved greatly.
I am raising money to support the research and care for Fanconi Anaemia patients to give hope to all families affected that one day a cure may be found to this awful disease.
Three wonderful ladies Sarah, Alex & Emma will be taking part in the "Dalton 5 Mile run" on 6th June in support of Phoebe and all money raised will be donated to Fanconi Hope.





Photos

4
  • +2

Supporters

381