Thanks for taking the time to visit my JustGiving page.
My son Walter was diagnosed with 'Dystroglycanopathy' a rare form of Muscular Dystrophy in July last year aged 8 months old. This came as a massive shock to Myself, My wife and Sydney our eldest son (3). At the time we had no idea what this meant for Walter and the effects it would have on him and us. Muscular Dystrophy is a group of muscle diseases that weaken and breakdown skeletal muscles over time. Many people with the disease will be unable to walk.
Walter is an amazing little boy and doing all he can to defy the odds stacked against him. This comes as daily inspiration to us all.
Just before Christmas 2 of my friends, Lewis Johns and Dan White mentioned we should do a charity ride for Walter to raise awareness and help other families like mine going through uncertain times. We decided we needed to really test ourselves and create a challenge that would not be easy!
We ended up on deciding to ride from Plymouth to Paris and back. We plan to get the Ferry from Plymouth to Roscoff on 2/5/19 and ride from Roscoff to Paris and back in a large loop totalling 780 miles, Our aim is to complete this over 7 days and return to Plymouth on 9/5/19. This will prove to be a worthy challenge for us 3 averaging 100+ miles a day.
Please help support us in any way you can and raise awareness of Muscular Dystrophy in the UK. Any donations large or small will be greatly appreciated and help families in the UK having to deal with muscle deteriorating illness's.