When you are first diagnosed with Addison's, it can be an uncertain and confusing time. You will have many questions and there is a lot of new information for you to digest while coming to terms with your diagnosis. Our charity helps people newly-diagnosed with adrenal insufficiency to make sure that both they and their families and healthcare providers understand their condition and can manage their health going forwards.As a rare disease we get no funding from NHS or HSE and rely entirely upon donations from the public and our members to operate. Please help us!

My story...
Back in 2017, I attempted to run the London Marathon.  Sadly, I had to pull out halfway through as I was incredibly ill.  Months (and a severe decline in health) later, I was diagnosed with Addison's Disease.  The Addison's Disease Self-Help Group have been a vital source of information and support for me as I have navigated through my new life with this illness.  From leaflets to give to employers and GPs, to discussion forums online and socials to meet others with Addison's, the ADSHG are a lifeline for many who otherwise would get little help in managing this rare illness.