I have been a wheelchair user since birth. I have a
condition called Spina Bifida Hydrocephalus. Spina Bifida means that when I was developing in the womb, my spine did not form correctly, meaning nerve signals cannot travel to my legs correctly, this is why I need to use a wheelchair. Spina Bifida is frequently diagnosed with a condition called Hydrocephalus.
This means that the fluid surrounding my brain does not drain correctly,
increasing the pressure in my skull. Although hydrocephalus is a ‘hidden
disability’ it can still have some effects on learning.
SBHI is a voluntary organisation who’s purpose is “to be a
powerful community united by Spina Bifida and Hydrocephalus and moving together towards fulfilled futures.” They “aim to foster an environment in which every person affected by Spina Bifida and
Hydrocephalus can lead a fulfilled life” .
I recently took part in a SHINE Intensive independence
training week. SHINE is a series of activity weeks, organised by SBHI. SHINE stands for Spina Bifida Hydrocephalus Ireland Nurturing Empowerment. Over the years, and especially during the SHINE week, I quickly learned that the best way to help people become independent, is to help them help themselves, rather than just doing things for them.
I truly feel, these are the skills I have learned in my 7 years with my PA Sharon, rather than do things for me, she has given me the skills to help myself.
We have decided to do a 5K wheelchair challenge. The aim is to raise awareness and funds for SBHI. We may encounter difficulties along the
way but we are determined we can do this. Please show your support by sponsoring us.
All donations are greatly appreciated. Thank you