Rachel and Naomi's Monsal Trail Half Marathon page

Rachel Gilkerson is raising money for LHON Society

Participants: Naomi George and Rachel Gilkerson

Donations cannot currently be made to this page

Monsal Trail Half Marathon · 21 March 2020

We are a patient-led support group for a rare condition called Leber's Hereditary Optic Neuropathy (LHON). Our group is comprised of LHON patients, family members and medical professionals. Our aims To provide support and information to those impacted by LHON; patients, their family, friends and healthcare providers. Provide guidance and representation on issues that affect the LHON community. Promote up-to-date knowledge and understanding of LHON in the welfare, medical and scientific communities. Facilitate research into understanding and seeking ways of preventing and ultimately reversing sight loss in LHON-affected people.

Story

As many of you know we have discovered that we have the gene for Leber's Hereditory Optic Neuropathy (LHON) in our family.  This is a disease that affects eye sight, leading to the loss of central vision and is passed down the female line.

We are always happy to share more about this with you.

There is currently no treatment or cure for this condition and we would love to contribute to the research that is taking place so that treatments can be discovered.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Donation summary

Total
£1,960.00
Online
£1,960.00
Offline
£0.00

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