My two good friends are completing a parachute jump 25th May 2019 in memory of our friend Sophie who died aged 31 on the 25th May 2018.

She has left a massive hole in our lives and of those that knew her, this experience won't fill that but it does seem a good way to mark a year since her death by raising much needed awareness of this dreadful condition.

EDS UK provides help and support to those who live with Elhers-Danlos Syndrome and provide information and support to the medical professionals which in our experience is something that is much needed. They are a small charity compared to the big boys so would really benefit from our help. I would also like to raise awareness as many people who live with this condition show no real outward signs to others and as such find they do not receive the help and understanding they deserve.

Please support us and donate any amount you can to raise money for this charity. It would be great if you could also forward this link to anyone you know who may be interested in sponsoring us and raise awareness of this condition.

Due to this devastating condition Sophie will not be there to cheer us on, but she will be with us as always, every step of the way.
Ehler Danlos Support UK "making our invisible visible"