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RARE GRILLS de Paor-Evans avatar
RARE GRILLS de Paor-Evans

RARE GRILLS 24 HOUR MARATHON BEAR CAST for THE ARTHROGRYPOSIS GROUP!

I'll be broadcasting a 24-hour non-stop bear cast for TAG because it is AMC Awareness Day, 30th June!

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TAG

We support those affected by Arthrogryposis to understand the condition and meet others

Charity Registration No. 1164158

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Thanks for taking the time to visit my JustGiving page...

This 30th June at 5pm, I will start a marathon 24-hr non-stop bear cast, playing the finest in Hip Hop, boogie, electro and a dash of funk on original 7" and 45s only! My reason (apart from loving to spin 45s), is to raise money and awareness for TAG, the UK charity for Arthrogryposis, or AMC as it is also known. AMC is a rare congenital condition that affects approximately 1 in 10,000 births. Typically this condition affects joint movement in the limbs and may require a number of surgeries and consultations throughout childhood and adolescent years. 

The Arthrogryposis Group (TAG) offer local level support across the UK to people living with Arthrogryposis Muliplex Congenita (AMC) and their families. TAG provide information and support through social media and face-to-face events across the UK. These events and meetings offer excellent opportunities to meet others with arthrogryposis, their families and anyone involved in their care. These events are crucial to help connect and support families navigating the often unknown terrain of AMC. 

TAG also aim to promote awareness to broader society and the medical profession, as well as advice for new or expectant families of AMC children. 

For more information please see:

https://www.arthrogryposis.co.uk

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