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Carly King avatar
Carly King

Ready Emmy Walk

Fundraising for Just4Children

91 %
£91,122
raised of £100,000 target
by 789 supporters
Donate

Just4Children

We provide support for families to help their sick and disabled children

Charity Registration No. 1164473

Story

Thank you for taking the time to visit Emmy's JustGiving page.

Please help us raise £100,000 for Just4Children to help fund Selective Dorsal Rhizotomy (SDR) - a life changing spinal operation to help Emmy walk.

To find out who is helping us reach our goal, please visit www.justgiving.com/teams/teamemmy

Text 'EMMY81 £5' to 70070 now to instantly donate.

We are a family of four from Basingstoke in Hampshire. We have a five year old daughter called Isla and a two year old daughter called Emmy.

Emmy was diagnosed with Cerebral Palsy Spastic Diplegia at 20 months old. She has a type of brain damage called Periventricular Leukomalacia (PVL) which was caused in the womb, which is where her story really begins. Emmy has been through such a lot in her short life already...

Emmy is an identical twin. At 23 weeks gestation, I developed acute Twin to Twin Transfusion Syndrome (TTTS) and had an emergency laser ablation surgery on my placenta. The laser surgery was the only hope that both our daughters would survive.

Three days after the emergency surgery, we found out that one of our daughter's hearts had stopped beating. In the doctor's next breath, they also told us that this most likely meant that our surviving daughter would have some form of brain damage, due to an interruption in the blood flow to her brain when her sister died.

Emmy was born suddenly at 32 weeks gestation (8 weeks prematurely). She was immediately taken away from us to the neonatal intensive care unit and we said goodbye to her twin sister, Ava, who was born sleeping.

Emmy's Cerebral Palsy causes increased muscle tone in her legs and feet which makes them constantly stiff. This affects her balance and coordination, making simple things such as crawling, cruising and even sitting up harder for her. Emmy is not able to stand or walk independently.

There isn't a cure for Cerebral Palsy, but there is a life changing surgery available called Selective Dorsal Rhizotomy (SDR) which is a special technique that involves cutting some of the damaged sensory nerve fibres which are causing the muscle spasticity (stiffness). SDR is the only surgical procedure that permanently reduced or eliminates the spasticity in the legs. Spasticity causes a lot of pain, and over time, shortening of muscles and tendons, joints contractures and bone deformities. Without SDR, Emmy would face multiple orthopaedic operations, Botox treatment and leg casting throughout her life and would ultimately need a wheelchair.

Emmy currently has physiotherapy and hydrotherapy to help with her condition. She wears special orthotic boots and splints to help keep her feet flat to the floor and uses a 'Kaye Walker' frame to move around.

The results from SDR are simply incredible and children that were told they would never walk are not only walking, they are running, jumping and dancing too.

Emmy is the most determined, funny, cheeky, messy and loving two year old you could ever meet. When she falls over, she gets straight back up and tries again with a huge smile on her face. We couldn't be more proud of her.

SDR is not currently funded on the NHS. However in the United States, DR T.S. Park has performed over 3,000 operations and people from all over the world have travelled to St. Louis for this treatment with him.

The money we raise will go towards the costs of the surgery (which will take place on 27th September 2016), travel and accommodation, post-operative intensive physiotherapy, and the equipment Emmy will require for her rehabilitation.

Our family's dream is to see Emmy doing the simple things in life that are often taken for granted - walking into school on her first day, playing in the park with her sister and jumping in muddy puddles like her favourite character, Peppa Pig!

We have a series of events planned this year to help raise as much money as possible. We will keep our supporters up to date on our website - www.readyemmywalk.co.uk, Facebook Page - www.facebook.com/readyemmywalk and twitter account @readyemmywalk. If you would like any further information or would like to join in with the fundraising, please don't hesitate to contact us at readyemmywalk@gmail.com

We are fundraising through Just4Children (registered charity no: 1164473). Just4Children will securely hold all of Emmy's funds and pay all invoices directly.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Thank you for reading our story. We will be forever grateful for your support.

Every donation takes us one step closer to getting the surgery that can help change Emmy's life forever.

Love Dave, Carly, Isla and Emmy xxx

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Fundraising team