I am taking the next two months off of work to trek the Appalachian Trail. I hope to cover around 800 miles & it would be amazing to raise £1 per mile.

My amazing sister has FOP - it is one of the rarest and most debilitating genetic diseases & all research funding comes from donations from kind people like you!

FOP Friends is a great charity that not only coordinates that crucial funding, but also provides a support network for people like Jessica who have FOP and their families, which I know my family appreciate.

I hope that by raising money for FOP it will be like taking my sister every step of the way with me. This is a solo effort so I'll be carrying my tent, food; trying not get lost; or eaten by bears!

See you at the other side (bear bag and bear bell permitting....)

Thank you so much for any amount that you're able to donate to a really worthwhile cause!

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.