Rebecca Taylor

We're Raising Money for Phelan McDermid Syndrome Foundation

Fundraising for PMSF UK
£1,140
raised of £3,000 target
by 42 supporters
Donations cannot currently be made to this page
Event: Royal Parks Foundation Half Marathon 2017, on 8 October 2017
Participants: Ruth Chadney, Penny Bradley, Kristina McIntyre and Neil Glover
PMSF UK

Verified by JustGiving

RCN 1157423
We provide support in the UK to people with Phelan-McDermid Syndrome

Story

Thanks for taking the time to visit our JustGiving page.Our friend Gibson Turner has inspired us to run a half marathon for PMSF UK. Gibson has a very rare syndrome called Phelan-McDermid Syndrome.

Please sponsor us to run the Royal Parks Half Marathon on the 8th October. There are just over 130 families who are diagnosed with PMS in the UK & Ireland, and approximately 1500 worldwide. All people with PMS have difficulty communicating, many are non-verbal and most have low tone in their limbs. All people diagnosed with PMS need additional care to support their daily lives. Please take a look at what the foundation are up to here:

http://www.pmsf.org.uk

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.



About the charity

PMSF UK

Verified by JustGiving

RCN 1157423
We provide support to people and their families in the UK who have Phelan-McDermid Syndrome (chromosome 22q13.3 deletion). This support is provided through information, therapies and financial grants, and by organising family days and get-togethers. Thank you for supporting PMSF UK.

Donation summary

Total raised
£1,139.97
+ £245.50 Gift Aid
Online donations
£1,139.97
Offline donations
£0.00

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