Right, as you may or may not know - in June 2019 I was diagnosed with primary sclerosing cholangitis (PSC) which is a liver disease. Turns out I’ve had it since my ops 11 years ago but either I wasn’t told or I didn’t listen / want to hear it 🤷‍♂️. It’s not alcohol related before you start and is heavily linked to ulcerative colitis (the disease that keeps on giving). It’s another silent disease which you cant see, so I do look normal (well - ish🤣) and if I didn’t say anything, you wouldn’t know!

There is no cure except for a transplant and I’m not there, yet…and hopefully won’t be for a long time. I will simply enjoy everyday as it comes and continue to be…me🥰 which includes continuing to be active and do silly things - like the London marathon. If you have a spare quid or two, it would be appreciated. No worries if not, the fact you e read this has raised awareness! 

If you want more details about the disease -Primary sclerosing cholangitis (PSC) is an immune-mediated disease of the bile ducts with no medical treatment. PSC is referred to as ‘the last black box in hepatology’ because there is so much we don’t yet understand about this complex condition, despite impressive research progress in the last decade. People with PSC urgently need a treatment that works.Donating to PSC Support means you are helping us fund more ground-breaking research projects. The next one could be the breakthrough that people with PSC have been waiting for.#LetsBeatPSC