Kathy Edwards

Remembering Daisy

Fundraising for SHINE
£1,063
raised of £1,500 target
Donations cannot currently be made to this page
In memory of Daisy Herron
SHINE

Verified by JustGiving

RCN 249338
We offer specialist advice & practical help to all with spina bifida & hydrocephalus

Story

At the 20 week scan, Daisy was diagnosed with Spina Bifida Hydrocephalus along with clubbed foot and the severity could not be determined. She did not move her legs at all during the first and re-scan.

 We were told to expect her to be wheelchair bound with no lower body movement, catheter dependent, and to have some degree of brain damage (again not determined degree).Daisys hips may have also been dislocated. She would have needed a shunt inserted into her brain perminently to drain fluid, spinal surgery and foot correction within 12 hours of birth.

Shunts are not always 100% effective and can cause side effects such as seizures etc.

We were put in contact with a neuro surgeon  ( who would be performing the surgery) and were more or less told to expect the worst.

Eventually we made the heartbreaking decision to no longer go through with the pregnancy and delivered our baby girl October 31st 2015 at 22 weeks, weighing 360g

We would love to be able to help those with the same condition as Daisy, and any parents who are or will be unfortunately in the same position we were.

Thankyou for reading, and thankyou for your donation!

Sleep tight Daisy, love always xx

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About the charity

SHINE

Verified by JustGiving

RCN 249338
Shine provides specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional care staff. Our wonderful supporters make our work possible, your fundraising makes all the difference!

Donation summary

Total raised
£1,063.00
+ £113.75 Gift Aid
Online donations
£1,063.00
Offline donations
£0.00

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