RI Dixon

Ian Dixon

Fundraising for Cambridge Rare Disease Network
£370
raised of £250 target
by 15 supporters
Donations cannot currently be made to this page
Event: Cambridge Half Marathon 2023, on 5 March 2023
We are building a thriving network to support people affected by rare diseases

Story

This is the fourth time that I will be running the Cambridge Half marathon for rare because people living with rare conditions deserve our attention and support.
Did you know one in 17 of us is likely to live with a rare condition at some point in our lives? But with over 10,000 different rare diseases each one affects very few people. So they’re difficult to diagnose, only 5% of all these conditions have treatments and too many children affected die too young. It can be a lonely and tough journey for the whole family.

Cambridge Rare Disease Network is a great charity supporting kids, young people and families affected. They connect families, provide local inclusive and accessible activities and help build lifelong friendships. They work with patient groups, healthcare professionals, researchers, Pharma and biotech companies to help improve the lives of the rare disease community UK wide.
All money raised will go towards inclusive and accessible activities that kids with any physical or learning disability can join in. Everything from nature walks and forest school to skiing and climbing. Find out more here www.camraredisease.org/UniqueFeet

Thank you very much for your donation. It really means a lot to me and to Cambridge Rare Disease Network.

Ian

About the charity

CRDN is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, and working together, we improve the journey towards better diagnosis, treatment and support for rare families.

Donation summary

Total raised
£370.00
+ £77.50 Gift Aid
Online donations
£370.00
Offline donations
£0.00

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